| 研究生: |
林謙 LIN, CHIEN |
|---|---|
| 論文名稱: |
家庭系統的力量:已婚男性照顧失智長者之經驗探究 The Influence of Family Systems: A Study on Married Men’s Experiences of Caring for Elderly Relatives with Dementia |
| 指導教授: | 傅如馨 |
| 口試委員: |
陳牧凡
孫頌賢 |
| 學位類別: |
碩士
Master |
| 系所名稱: |
教育學院 - 輔導與諮商碩士學位學程 Ma Program of Counseling and Guidance |
| 論文出版年: | 2026 |
| 畢業學年度: | 114 |
| 語文別: | 中文 |
| 論文頁數: | 128 |
| 中文關鍵詞: | 失智症 、已婚男性家庭照顧者 、照顧經驗 、家庭系統觀 、詮釋現象學 |
| 外文關鍵詞: | dementia, male family caregivers, caregiving experiences, family systems perspective, interpretative phenomenological analysis |
| 相關次數: | 點閱:59 下載:2 |
| 分享至: |
| 查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報 |
在臺灣,失智症照顧多由家人於家中承擔。近年男性家庭照顧者比例逐漸上升,然而,針對已婚男性照顧失智父母之家庭關係、角色調整與照顧處境的研究仍相對有限。故本研究旨在以家庭系統觀出發,採詮釋現象學分析方法,透過深度訪談探究已婚男性家庭照顧者照顧失智父母之經驗。
本研究共訪談三位已婚男性家庭照顧者。研究結果顯示,已婚男性照顧失智父母的歷程,始於日常生活中父母狀態逐漸浮現的「不對勁」,並在父母生活自主性逐漸鬆動的過程中,看見照顧者位置隨之浮現。男性照顧者經由長子文化倫理的視野觀看家庭處境,於自然但非自願中成為「較應承接照顧的人」;當失智照顧需求進入生活核心,其工作、居住與日常秩序亦隨之被重新編排,並在照顧不能出現空缺的責任位置中,逐漸逼近身心負荷界限的照顧處境。同時,隨著父母逐漸失去自主生活能力,親子位置與家庭結構亦產生翻轉;已婚男性照顧者也需在夫妻界線、手足補位與核心家庭維繫之間持續調整。最後,面對父母失智持續退化,照顧者逐漸在「終將失去」的存在視野中安放照顧責任,並透過與家庭成員、醫療與長照資源等「他者」的連結,使照顧不致成為孤立承擔的處境。
研究討論指出,失智照顧對已婚男性而言,除了症狀負荷或照顧工作增加,其生活秩序、居住安排與工作型態更是受照顧處境牽動而重組,而這些變化需放回孝道倫理、長子序位與華人家庭文化脈絡之中理解。其次,照顧仰賴配偶、手足、醫療與長照資源等家庭內外系統的補位與銜接中被維繫與維持。再者,已婚男性同時置身於原生家庭與核心家庭之中,需在兒子、丈夫、父親與照顧者等多重角色間持續協調。最後,就本研究的結果與討論,本研究提出對助人工作者、已婚男性家庭照顧者及其家屬,以及未來研究之建議。
In Taiwan, dementia care is primarily provided by family members within the home. Although the proportion of male family caregivers has increased in recent years, studies focusing on the family relationships, role adjustments, and caregiving experiences of married sons caring for parents with dementia remain limited. Therefore, adopting a family systems perspective, this study employed Interpretative Phenomenological Analysis and conducted in-depth interviews to explore the lived experiences of married male family caregivers caring for parents with dementia.
Three married male caregivers participated in this study. The findings revealed that the caregiving journey began with subtle signs of “something being wrong” in everyday life, through which caregivers gradually recognized the emergence of their caregiving position as their parents' autonomy progressively declined. Viewing family circumstances through the lens of cultural ethics associated with the eldest-son role, participants came to see themselves as those who “ought to assume” caregiving responsibilities in a natural yet involuntary manner. As caregiving demands gradually became central to their lives, their work arrangements, living conditions, and daily routines were reorganized accordingly, while the responsibility of ensuring uninterrupted care gradually pushed them toward the limits of their physical and psychological capacities. As parents increasingly lost their ability to live independently, parent–child roles and family structures were also transformed. Meanwhile, married male caregivers continuously adjusted the boundaries between marital relationships, sibling support, and the maintenance of their own nuclear families. Finally, as they faced the ongoing deterioration associated with dementia, caregivers gradually learned to place their caregiving responsibilities within an existential horizon characterized by the anticipation of eventual loss. Through connections with family members, healthcare professionals, long-term care services, and other forms of “others,” caregiving no longer remained a burden borne in isolation.
The discussion further suggested that, for married men, dementia caregiving involves not only symptom burden and increased caregiving tasks but also a reorganization of life order, residential arrangements, and work patterns. These changes should be understood within the broader context of filial ethics, eldest-son expectations, and Chinese family culture. Furthermore, caregiving continuity was sustained through the complementary support and coordination among spouses, siblings, healthcare professionals, and long-term care resources. At the same time, married male caregivers, situated simultaneously within their families of origin and nuclear families, were required to continuously negotiate multiple roles as sons, husbands, fathers, and caregivers. Based on these findings, implications and recommendations are proposed for helping professionals, married male family caregivers and their family members, as well as future research.
第一章 緒論 1
第一節 研究緣起 1
第二節 研究背景 2
第三節 研究目的與問題 7
第四節 名詞定義 8
第二章 文獻探討 10
第一節 認識失智症 10
第二節 男性家庭照顧者之相關研究 12
第三節 家庭系統理論與失智症家庭照顧之相關研究 17
第三章 研究方法及步驟 22
第一節 研究設計 22
第二節 研究參與者 25
第三節 研究工具 26
第四節 研究程序 27
第五節 研究的嚴謹性 30
第六節 研究倫理 31
第四章 研究結果 32
第一節 受訪者G的置身結構 32
第二節 受訪者H的置身結構 44
第三節 受訪者L的置身結構 58
第四節 普遍結構 75
第五章 討論與建議 87
第一節 從症狀負荷到生活秩序重組:男性照顧者存在位置的牽動 87
第二節 在孝道倫理與長子序位交織下所實踐的照顧意義 90
第三節 男性在家庭與外部系統之間維持照顧運作的樣態 92
第四節 在原生家庭與核心家庭間:雙重家庭位置的擺盪 96
第五節 結論與建議 99
參考文獻 110
附件 124
附件一 研究參與同意書 124
附件二 正式訪談綱要 126
附件三 研究參與者基本資料問卷 128
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